The Association of Young People with ME (AYME) - Trust and Membership Fundraiser

AYME wants to ensure children and young people with ME (also known as Chronic Fatigue Syndrome) have access to quality medical care, information, education, employment and be able to lead the lives they choose, free from isolation.

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Achievements

  • Responded to 1,000 requests for help received by our telephone information and help line, and approaching 200 e-help enquiries in 2013
  • National Support Workers (funded by Children in Need) supported 94 children and young people in crisis or with complex cases in 2013
  • In October 2014 AYME facilitated the British Association of CFS/ME (BACME) conference in Milton Keynes with 159 health care professionals from across the UK attending
  • Engaged young people, parents and members in a consultation to amend the Children and Families Bill, to see improved support in schools for children with medical conditions, released May 2014 and re-wrote the guidance ‘Educating Children with Health Needs’ with three other national charities. The process included two members and their families talking to Peers in the House of Lords and attending a meeting at the Department of Education

 

  • Attended networking event at Westminster to raise awareness of ME/CFS
  • Attracted nearly 79,000 visitors to the AYME website, enabling them to benefit from the detailed information available from this vital resource
  • Enrolled 364 new young members giving a total at year end of 3,674 members
    AYME accepted an invitation to join the Executive Committee of the UK CFS/ME Research Collaborative as one of its founder members, attending its first conference in September 2014.
  • An increased level of support for corporate fundraising has freed up the time of the Chief Executive to strike-up and develop further relationships. The Chief Executive is now able to pass enquiries and requests onto myself, meaning she is more able to get out of the office and meet more potential supporters.

Constant Progress

  • With the support of automotive company, JCT600, AYME’s income has dramatically increased. JCT600’s Finance Director is a parent of an AYME member, and nominated the charity to be the company’s charity of the year for 2014. Since then, the company has held several high-profile fundraising initiatives including the Tour de JCT, where company directors cycled between various company-owned car dealerships in Northern England. My input has enabled AYME to keep in constant contact with JCT600, encouraging the staff team to continue to fundraise for us, and personally thanking all other companies which have sponsored their efforts. A meeting has been provisionally planned for autumn 2014, for AYME’s Chief Executive to travel to JCT600’s headquarters and personally thank the senior staff team based there and discuss a possible ongoing relationship.

 

  • Having followed up on an email sent to me by the Vice Chair of Trustees, I was able to establish a relationship with the Melia hotel in London. Having now met with AYME’s Chief Executive, the hotel’s marketing lead has expressed a keen desire to support the charity. An art competition for AYME members has been provisionally planned for 2015, with a display of works being held in the hotel’s lobby, and a reception held for members, parents and journalists. Myself and AYME’s Chief Executive are also developing links with the Melia hotel’s PR agency, to garner their support for the event. It is possible this will be followed by a black tie dinner in the autumn.
  • Helped shape and develop the ‘Knit a Tulip for ME’ campaign, which is being managed by the ‘AYME Mums’. I have advised the group on social media presence, how to promote their campaign, how the campaign will work, and continued to support them by promoting the initiative through AYME’s own communication channels. The experience has led to a close, positive relationship between myself and the group of AYME parents and supporters, and a campaign which we hope will come to fruition during ME Awareness Week. The launch will include a display at the Melia Hotel during MEAW 20015